We try hard to keep our information up to date and accurate. Please let us know if a webpage we have a link to has been moved. Although we can’t list everyone, please let us know if you’ve found a particularly useful site.

Inherited Cancer Syndromes

See our Genes tab to learn more about inherited mutations and hereditary cancer syndromes.

General Information on Cancer:

Cancer Australia is the Australian Government's site on all aspects of cancer, for patients and doctors

eviQ has detailed Australia-specific information on germline testing and cancer risk management for doctors. It also has plain-language information for patients. The site is managed by the Australian Government's Cancer Institute.

Dr Hilda High is one of the experts who write and update the eviQ Australian Guidelines for genetic testing and risk management.

Support groups

There are heaps! They range from common cancers such as breast cancer to rare tumours. Some to choose from:

Pink Hope was set up to support young women affected by hereditary breast and ovarian cancer

Lynch Syndrome Australia provides information for people who have increased risk of bowel (colon) and uterine cancers due to a mutation in one of the 4 mismatch repair genes associated with Lynch syndrome

Pheo Para Troopers is a support group for people affected by the uncommon tumours called paragangliomas and pheochromocytomas.

Rare Cancers Australia is a charity whose purpose is to improve awareness, support and treatment of Australians with rare and less common cancers.

You'll find more information about specific support groups for inherited cancer syndromes on our Genes tab

General Genetics?

We only deal with cancer genetics. If you're looking for a general genetics clinic or a public clinic, you'll find a list here

Do you or your relatives live overseas?

For relatives in New Zealand, there are Private Services as well as a public services divided into 3 "hubs" based Wellington, Auckland and Christchurch.

For relatives that live further afield, there are usually local services. Your relative should speak with their doctor. If they are still having trouble accessing testing, contact us - we may have more information.